INSIDER
Changes in his body while performing simple tasks leads to ALS diagnosis for San Antonio veteran
Read full article: Changes in his body while performing simple tasks leads to ALS diagnosis for San Antonio veteranEveryday simple tasks like running became harder to accomplish for retired Army veteran Norman Jones.
FDA advisers vote against experimental ALS treatment pushed by patients
Read full article: FDA advisers vote against experimental ALS treatment pushed by patientsFederal health advisers have voted overwhelmingly against recommending approval of an experimental treatment for Lou Gehrig's disease, the fatal muscle-wasting disease.
Experimental treatment pushed by ALS patients gets day before FDA, but agency unconvinced it works
Read full article: Experimental treatment pushed by ALS patients gets day before FDA, but agency unconvinced it worksThe Food and Drug Administration meets this week to consider a much-debated treatment for Lou Gehrig’s disease.
New craft beer in San Antonio raises awareness, money for ALS research
Read full article: New craft beer in San Antonio raises awareness, money for ALS researchThe new Juan-dering beer is now available at Alamo Beer Company for a limited time. The beer is a part of ALES for ALS, a fundraising program that raises awareness and money for ALS research.
FDA approves ALS treatment for patients with genetic disease
Read full article: FDA approves ALS treatment for patients with genetic diseaseThe FDA has fast-tracked a new ALS treatment for patients whose disease is genetic. Patients who have been getting the injections report a slowing of their disease progression and even renewed strength.
Excitement for new ALS treatment dulled by astronomical price tag
Read full article: Excitement for new ALS treatment dulled by astronomical price tagA new treatment for ALS was approved by the U.S. Food and Drug Administration two months ago and is about to become available to patients this month. However, there’s a drawback -- the price tag.
San Antonio woman living with ALS shines light on healthcare disparities with the disease
Read full article: San Antonio woman living with ALS shines light on healthcare disparities with the diseaseA San Antonio woman living with ALS is hoping to shed light on the disease and healthcare disparities she and others face.
‘New You’: Couple embarks on bucket list road trip to raise awareness for ALS
Read full article: ‘New You’: Couple embarks on bucket list road trip to raise awareness for ALSAfter testing out a new drug for ALS, Juan Reyes set out on a cross country road trip so that he and his high school sweetheart could check off some of their travel bucket list destinations and raise awareness of the disease along the way.
Pressured by patients, FDA reviews ALS drug with modest data
Read full article: Pressured by patients, FDA reviews ALS drug with modest dataThe Food and Drug Administration meets next week to review a closely watched drug for ALS, or Lou Gehrig’s disease, following months of lobbying by patient groups and congressional lawmakers.
Long-awaited new ALS drug shows promise at UT Health San Antonio
Read full article: Long-awaited new ALS drug shows promise at UT Health San AntonioSAN ANTONIO – With so many troubling health concerns during the coronavirus pandemic, UT Health San Antonio has some promising news for those with ALS. Dr. Carlayne Jackson is an ALS specialist and professor of neurology at UT Health San Antonio. Many ALS patients die within two to three years and suffer from a rapid decline in motor function, and currently there are only two other drugs approved by the FDA to treat it. Five of the patients used in the phase two clinical trial were from UT Health San Antonio. One other positive finding according to Jackson is that during Covid-19′s use of telemedicine, the most vulnerable ALS patients managed to remain in better contact with their doctors.
San Antonio steps out for the Walk to Defeat ALS
Read full article: San Antonio steps out for the Walk to Defeat ALSSAN ANTONIO – Hundreds of walkers made their way to San Pedro Springs Park Saturday morning for the Walk to Defeat ALS. There were more than 100 teams at this year's walk, including Judy's Joggers. "We created a team to try and support her to find a cure for ALS," said Mary McKay, with Judy's Joggers. The Walk to Defeat ALS brings in funds for the local chapter to sustain care services and to support research, but it also brings the community together. The Walk to Defeat ALS had been the organization's biggest fundraiser, until this summer's Ice Bucket Challenge.